Reflections Following the Loss of a Beloved Cancer Advocate

The passing of our dear friend, advocate and colleague Ferdinand, has shaken the close-knit global chronic myeloid leukemia (CML) community. CML, a rare form of leukemia that used to be fatal, now is treated with innovative targeted therapies commonly referred to as TKIs. There has been unprecedented global access to these TKIs and this has fostered the development of one of the strongest global patient communities for a rare cancer. Ferdinand, from Nairobi, Kenya, was a loved member of this community.

Let our Global Playlist of Inspiring Songs Rock Your World Cancer Day!

Every day can feel like World Cancer Day when you are living with Cancer. A diagnosis changes our lives and our family’s lives from the moment we hear the news. We want you to know that you are not alone in facing your diagnosis. In fact, we created a playlist of inspiring songs from around the world to keep you going so you can listen anytime and feel the support of your community.

Finding Value in the Patient Experience

Health systems around the world are strained due to the high burden of costs. In an attempt to guide decision-makers in their choices on behalf of patients, the topic of value frameworks was born. These value frameworks evaluate all aspects of cancer treatment: clinical benefit, side effects, and improvement in patient symptoms or quality of life. But given the complexities of the multitude of health systems around the world, it is not a straightforward discussion. And right now, it’s a dialogue driven by thought leaders and health economists from the US and Europe. But there are critical voices is missing from this discussion: patients and patient advocates.

20 Years – A Letter to Max

Each year on October 19th, Max’s Day, we honor Maximiliano “Max” Rivarola and his legacy of lifesaving support for cancer survivors through the work of The Max Foundation. This year, on Max’s Day at The Max Foundation’s 20th Anniversary Celebration, I wrote a letter to Max, reflecting on what his legacy has meant for patients,….

Lan’s Story

In Vietnam, due to the lack of specialist in rural areas, a significant number of chronic myeloid leukemia (CML) patients with minimal cash in hand must travel hundreds to thousands of kilometers to reach the hospitals in the city. The expenses for the trip itself is already a challenge for many patients let alone the cost of treatment. But today, there are numerous CML survivors who directly benefit from The Max Foundation’s patient access program to receive their cancer treatment at no cost. A living testimony to the success of our program is Lan.

Access to Treatment is Access to Life: A Message From Princess Dina

As part of our 20th Anniversary Celebration on October 19th, The Max Foundation was honored to have Princess Dina, President-elect of the Union of International Cancer Control, reflect on our global efforts over the last two decades. We share her letter here with gratitude and humility. “Lack of access to treatment” is a five-word sentence that is….

With Love in South Africa

Between all the emails, paper and meetings and the general rush of everyday life, it can be often neglected to reflect on the actual motivation for the efforts and input we make. On a recent dry and hazy morning my colleague, Geraldine, and I find ourselves lost in one of the neighboring townships. In South….

A Chance Encounter

Suddenly, I noticed a man sitting just opposite to me staring at me. I thought he was annoyed at my loud voice. so I reduced my volume and kept on talking with my friend. While explaining, my eyes went towards the man. Again I noticed he was keenly listening to our conversation.

Finally the stop came! I got down with my friend and took 10 steps. I heard a voice behind me calling “Madam, madam!”

Past Due

The anniversary of someone’s death is always difficult. Just as we recently remembered Max’s passing, we also hold the others who have passed too soon. Below, Beena shares a remembrance of our dear Jaya, who was a committed team member and played that role of a patient advocate amazingly well until she so sadly lost her battle….

Announcing the Max Global Experience – Mt. Kinabalu!

Join us this summer in Malaysia! In July 2017, a team of partners, cancer survivors, and friends like you will join us from the USA, Malaysia, and beyond to embark on an adventure with a common goal: raising funds to carry out our work supporting cancer patients in Malaysia.

World Cancer Day – Empowering Low- and Middle-Income Countries

Surviving cancer in countries that lack the support and care, the word empowerment is not in patients’ dictionaries. But if we could increase the access to treatment and care in these countries, can we turn the tables?

Announcing the 2016 Excellence in Patient Advocacy Award!

Each year, The Max Foundation chooses a colleague to receive our Excellence in Patient Advocacy Award, honoring a member of our global team who has done something especially remarkable that year. On December 17th, we were delighted to present this year’s Excellence in Patient Advocacy Award to Viji Venkatesh, Region Head for South Asia, for her tireless dedication to the patients she serves.