Be Among the First to Tour Our New Website!
Our first major milestone of 2016 is the launch of our brand new website! Redesigning our website has been both a strategic and soul-searching exercise that we have done all for you.
This Thursday, 9/22, The Max Foundation and My PCR will join the global CML community in raising our collective voices in support of the needs of people living with CML worldwide. Initiated by the patient community in 2008, September 22 (9/22) has marked World CML Day because of its symbolic significance – the disease is caused by the change of chromosomes 9 and 22. On this day, patients, advocates, physicians and caregivers across the globe come together to raise awareness about their needs to the general public, politicians, and medical professionals across the world.
World CML Day is also a significant date for the My PCR initiative as it marks four years since the initial launch of the campaign. The My PCR initiative is a patient driven global awareness effort, carried out in partnership with a coalition of CML-focused organizations that aims to increase awareness about the need to monitor CML treatment and the right of every patient to know their test results. This year, The Max Foundation and other My PCR partners worldwide are honoring 9/22 by engaging with their physicians through the My PCR “Treat Your Physician” grant initiative. Through My PCR, partners are awarded a grant to create a My PCR themed treat to say THANK YOU to their physicians for their dedication to patients and further open patient – physician dialogues about the role of PCR testing in the monitoring of CML.
Keep an eye out on social media all this week for photos and updates about “Treat Your Physician” activities around the world, and let’s make our voices heard!
The Max Foundation is a leading global health nonprofit organization dedicated to accelerating health equity. For 27 years, Max has pioneered practical, scalable, high-quality solutions to bring life-extending treatments and patient-centered health care to more than 100,000 people living with cancer and critical illness in low- and middle-income countries. Max believes in a world where all people can access high-impact medicines, where geography is not destiny, and where everyone can strive for health with dignity and with hope.
Shalet Souza is a 42-year-old nun at the Institute of Sisters of the Little Flower of Bethany, in Mangalore, India. She currently takes care of aspiring nuns and lives a life devoted to learning and supporting others, including the poor and needy in her region. At 29, Shalet sought treatment for frequent fevers, which would….
Health systems around the world are strained due to the high burden of costs. In an attempt to guide decision-makers in their choices on behalf of patients, the topic of value frameworks was born. These value frameworks evaluate all aspects of cancer treatment: clinical benefit, side effects, and improvement in patient symptoms or quality of life. But given the complexities of the multitude of health systems around the world, it is not a straightforward discussion. And right now, it’s a dialogue driven by thought leaders and health economists from the US and Europe. But there are critical voices is missing from this discussion: patients and patient advocates.