Between all the emails, paper and meetings and the general rush of everyday life, it can be often neglected to reflect on the actual motivation for the efforts and input we make.
On a recent dry and hazy morning my colleague, Geraldine, and I find ourselves lost in one of the neighboring townships. In South Africa we are very aware of personal safety and in this situation one could easily decide to return to the safety of home, giving up on the set mission. We are however determined and decide to stick to our commitment in meeting with the Childhood Cancer Organization (CHOC) at the pediatric oncology ward of George Mukhari Hospital. Today, we are connecting with the young patients and their families and handing out the knitted hats made “With Love in Every Stitch”.
This will be Geraldine’s first contact with patients and partners since she joined The Max Foundation this spring. She expresses her concern for how emotional it will be to face the children and parents later in the day.
We receive a warm welcome at the hospital and make numerous new friends as we navigate our way to the ward. This is no small hospital, in fact it is one of the larger teaching hospitals in South Africa, but still we are received as family.
The matron from the pediatric ward appear in the doorway dressed in brilliant white as the angel she is. As Antonella from CHOC makes the introductions we become aware of a buzz in the ward. Tiny faces look at us between the rails of the cribs and doorways.
We move from bed to bed, engaging with the parents, giving each child the opportunity to find the hat they want and then we came to the littlest one. She is only six months old and currently facing stage four Neuroblastoma. We take turns in holding this little one, adorned in her beautiful new white hat, eyes smiling at all the attention and I know that this is the reason why we commit every day to improving the lives of those living with cancer.
We visit the isolation rooms. Cleaned hands, and mouths covered, we enter these quite spaces with our bag of hats. We spread the hats on the bed for the child to select one. For a moment, there is an option for that child, even if it is only the personal choice of the color of a hat.
At the last bed we cover the white sheets in pink and purple, our experience thus far indicates that pink and purple are girl colors. This girl however is not impressed with pink or purple, yet her eyes light up when we produce the brightest, multi colored hat, this is her hat! I take out my phone to show her on the camera how pretty she looks and as I lean in to share the screen something catches my eye. Hiding beneath her bedsheets I find our dear friend Maximo!! He made his way here as a donation to CHOC, giving comfort to this young brave girl. As we read her colorful book, with her colorful hat I can only wish her a colorful life.
As we make our way back, Geraldine reflects on the visit. She notes how energized and grateful she feels, how amazing it is to be associated with The Max Foundation and the opportunities we each have to change lives. I know this feeling so well and this is why I, too, look forward to the emotion and engagement that is inspired by visits with patients.
Cathy Scheepers is a Lead Program Officer for the Africa Region and is based in South Africa.
As part of our 20th Anniversary Celebration on October 19th, The Max Foundation was honored to have Princess Dina, President-elect of the Union of International Cancer Control, reflect on our global efforts over the last two decades. We share her letter here with gratitude and humility. “Lack of access to treatment” is a five-word sentence that is….
The Indian subcontinent has always been characterized by the stoic inner strength of its population that has helped them overcome natural and man-made disasters that seem to always be lying in wait for them. Burdened by their large populations, poor economy and the inept administration of their largely unstable governments, it has fallen upon the people to come to their own rescue.
And it is not so different for their health either. Besides the share of debilitating infectious diseases, many are facing a rising incidence of non-communicable diseases, such as cancer. The challenges here go beyond funding. There is fear, denial, and the heavy burden of stigma.
In Guatemala, there are 14,200 new cases of cancer a year and from this amount 9,100 people die of cancer or 64.7%. Most of these diagnoses could have been prevented or better treated if diagnosed early. In Guatemala only the persons who have access to the national social security plan have free services and treatment, but poor quality and lack of medications or in most occasions. People who do not have social security have to pay for health services and for medications. As per statistics taken from Globocan 2008, the most common cancers in Guatemala are prostate, cervix, stomach, breast and lung cancers.
