March 9th is a day of mourning and grief for The Max Foundation and for anyone who knows our story and loves the Organization. On March 9th 1991, 30 years ago, cancer took Max from us at MD Anderson Cancer Center at 11:10 am. For those lucky to have known him, Max will forever be the kind and happy teenager who loved to sing in the shower, play tennis, ski, hang out with friends, and who was a loyal and wonderfully sweet and caring child.
No one’s life should be cut short at the age of 17; no parent should have to lose their son to a cruel disease such as cancer. Looking back at Max’s cancer journey I realize he had no chance; no good attitude, no visualization or meditation, no access to experts and treatments available, nothing was enough. The disease, chronic myeloid leukemia (CML), was mean and powerful in 1991 and he – we – were no match.
But 30 years have passed and better treatments exist today for CML and other types of cancer. If Max would have been diagnosed this year, one could expect that he would live for 30 years or more, as long, that is, as he was able to access the innovative and life-saving treatments of today. However, there are deep health disparities in the world and many of those diagnosed with cancer will lose their battle, not because there are no treatments, but because they don’t have access to these treatments.
For The Max Foundation, making sure every patient diagnosed with CML or other treatable forms of cancer can access the best treatment, care and support, is in our blood. We do it for Max and we do it with Max who is always with us. Because we know the common humanity of pain for our loved ones, and because to the extent that we can take away the pain, we should. For Max and for every person who lost their unfair battle with cancer we will continue to strive to eradicate inequities in cancer survival. We will do our best, work as hard as we can to ensure we do not leave anyone behind.
With the support of deeply committed donor partners, the most committed leading hematology and oncology physician partners, and smart and capable distribution partners, we will continue to prevent the unnecessary premature deaths of those least privileged around the world. Because where you live should not decide if you live.
Pat Garcia-Gonzalez is the CEO of The Max Foundation. Under Pat’s direction The Max Foundation is dedicated to accelerating health equity by delivering medication, technology, and services to patients facing cancer and other critical illnesses, focusing our energy on those who no one else is helping. Pat lives in Edmonds, Washington, where she raised her four sons.
By Dr. Mipsang Lama Partner Physician at Patan Hospital in Nepal When Treatment Feels Like a Miracle Paroxysmal nocturnal hemoglobinuria (PNH) is a rare and devastating blood disorder. In many high-income countries, it is a condition with established treatment pathways. But in Nepal, for years, it was something we could diagnose, yet not truly treat…..
Dr. Ong Tee Chuan, Hematologist at Hospital Ampang, Malaysia, break down what access to treatment means for the patients he treats.
When he was initially diagnosed with chronic myeloid leukemia, Prashant’s first concerns weren’t whether he would be able to afford treatment, it was about how much time he had left…years? Months? Would he be able to complete his degree? Would he be able to care for his father?
But his doctor reassured him. Treatment was available, and before he could worry about the cost of it, Prashant was connected with The Max Foundation and worked on getting enrolled in the access program we administer.
