I have learned that the pain in the heart and soul is deep and will always be there. The ‘bucket’ has a hole, and even when you dedicate every day of your life to making sure other families don’t have to live with this pain, the bucket will never be filled.
I have also learned that regardless of who you are and where in the world you live, the fear and anxiety of the diagnosis is universal. So is the pain of losing your loved one. The pain is even more deeply excruciating when we are left with the belief that had we had the resources, had we lived elsewhere, our loved one would still be with us. It is unbearable.
I have learned that it is actually possible to prevent many cancer deaths today. When we work together with a single focus on alleviating suffering and preventing premature death from cancer for patients who need help today, we can indeed save families from this tragedy. Through the work of The Max Foundation over 26 years, I continue to experience every day the amazing power of all of you who decided to step up and make a difference. I can recount story after story of individuals from all walks of life who have made it possible for more than 100,000 families to have extra time with their loved ones. Even if the bucket of our soul will never be fixed, the legacy and memory of our loved ones live through these families.
On this day of remembrance for Max, I want to honor the lives of all those who are not with us today, and whose memory inspires us to step up and make a difference. I invite you to share in the comments who you lost and how they inspire you.
May their soul rest in peace and may we continue to find the strength every day to honor their memory with our efforts.
Pat Garcia-Gonzalez
Pat Garcia-Gonzalez is the CEO of The Max Foundation. Under Pat’s direction The Max Foundation is dedicated to accelerating health equity by delivering medication, technology, and services to patients facing cancer and other critical illnesses, focusing our energy on those who no one else is helping. Pat lives in Edmonds, Washington, where she raised her four sons.
Being a patient or I better call myself and others as a Spartan, someone who is fighting for something each and every day.” –Thilip Kumar Ragavan
We first met Thilip Kumar Ragavan in May 2014. He was a young chronic myeloid leukemia Spartan in the patient workshop at Hospital Ampang and was newly diagnosed with CML at that time, but the smile never left his face. Bright, vibrant, energetic, and positive – that’s Thilip.
March 9th marks a somber anniversary; the day Max lost his 3 year battle with chronic myeloid leukemia (CML). For those of us who love Max, who either knew him then or who know and love him now, this will always be a day of sorrow. The words that come to mind are words such as ugly, unfair, impossible, and the feeling is one of emptiness; a whole in one’s heart. Max was a real person, a beautiful young child, whose encounter with cancer was nothing but a tragic episode.
Between all the emails, paper and meetings and the general rush of everyday life, it can be often neglected to reflect on the actual motivation for the efforts and input we make. On a recent dry and hazy morning my colleague, Geraldine, and I find ourselves lost in one of the neighboring townships. In South….
