Our Guest Bloggers collaborating on this summit overview are members of The Max Foundation team based in India who led and participated in the Friends of Max 2015 Leadership Summit. They include Shilpi Sirohi Singh, Ashika Naik, Ameya Surve, and Priyanka Kandalgaokar.
In India, the word “Mela” means ‘gathering’ or ‘to meet’ or a ‘fair’. India is a land of fairs and festivals – every month there are festivals held throughout the different regions of India.
Even though there was no festival on the 19th of May in Hyderabad, it was as if the city was in a festive mood on the second day of our the Friends of Max 2015 Leadership Summit (read the recap of our first day here) which was all set up like a Mela or festival. In honor of the day, we adorned the four corners of our venue with colorful balloons and decorations to make it look like a true Mela. However, our Mela was not simply a party. The four corners of the Mela each featured a workshop:
For Friends of Max, volunteers plays a central role in creating awareness of the program, educating patients, and raising funds. At this workshop, participants discussed ways to identify volunteers and strategies to train and retain them.
Caregivers – spouses, siblings, parents, or friends of a patient – face a distinct set of issues, whether they are financial, social, or emotional. For instance, a daughter desperately managing her mother’s treatment may struggle to ensure her education is not affected.
This workshop on caring for caregivers offered ideas and strategies on supporting caregivers with their particular issues. It proved to be a popular topic – many participants felt the workshop provided them with a platform to share their concerns and requested future event sessions focused on further addressing the needs of caregivers.
When people living with cancer are able to advocate for themselves, they are able to effectively communicate an interest, desire, need, or right – and negotiate to resolve it. Effective self-advocates understand individual strengths and needs, can develop personal goals, and learn to recognize legal rights and responsibilities. Leadership Summit participants discussed various health insurance topics, such as disclosure in policy diagnosis, insurance available without medical checkups, and applying for insurance online.
People facing cancer have better health outcomes when their physicians are effective, empathetic communicators. When a patient is able to talk with their doctor, they learn to trust their doctor and are able to advocate their needs. By strengthening this relationship, patients will be more willing to follow their doctor’s instructions, leading to healthier decisions and results. Many factors come together to contribute to building a strong relationship with our physicians which ultimately helps the cancer survivor to build self-confidence.
Overall, the Mela was a great success as a platform for the second day of the Friends of Max 2015 Leadership Summit and participants actively engaged in their workshops. It was an honor to be among such accomplished individuals and to be able to participate in the Workshop Mela. Congratulations to all the participants for their successful contribution to this historic event!
The Max Foundation is a leading global health nonprofit organization dedicated to accelerating health equity. For 28 years, Max has pioneered practical, scalable, high-quality solutions to bring life-extending treatments and patient-centered health care to more than 100,000 people living with cancer and critical illness in low- and middle-income countries. Max believes in a world where all people can access high-impact medicines, where geography is not destiny, and where everyone can strive for health with dignity and with hope.
The Max Foundation is joining Poptivism — a consumer-driven charitable giving program that sells unique PopSocket Grips and donates 50% of the sales of those PopGrips to support a nonprofit’s mission (that’s us!). Please consider purchasing one of our Poptivism PopGrips today! With each purchase, you’ll help expand access to lifesaving cancer treatment the world over.
Every year our South Asia team organizes 15–20 meetings that unite hundreds of the patients we serve, their families, caregivers, and physicians. These meetings provide a safe and comfortable platform for everyone to share their insights and learn from each other’s experiences with cancer.
A new study in Clinical Epidemiology and Global Health features the Glivec®Patient Assistance Program (GIPAP) and reveals that “chronic myelocytic leukemia (CML) is diagnosed at an earlier age in poorer populations than in more affluent populations.” The study focused on India’s CML population to investigate other possible contributors to early age at onset. The team of authors….
