This year, each of us had to learn how to support one another amid a global pandemic. In these difficult times, our mental and physical health have been tested and finding daily comforts is critical to our health. As each of us has taken steps to avoid infecting ourselves and reducing the risk of infecting others in our community, there is also the possibility of taking action to improve our mental health.
Living with cancer and a pandemic has its many challenges and uncertainties, and our team is always looking for new ways to further support patients.
We recently hosted a virtual meeting offering patients a chance to be present and find serenity through mindful meditation practice. We had 70 people join our session from nice countries across Latin America: Argentina, Mexico, Guatemala, Nicaragua, Bolivia, Peru, Ecuador, Chile and Venezuela.
One of our partner health care providers from Roosevelt Hospital, Guatemala said patients were so relaxed they did not want to leave the room, they stayed in a group singing.
I have been working on mindfulness since 2012, coincidentally, the same year I joined The Max Foundation. After studying psychology, I did my training in neuropsychology. At the time, mindfulness was just becoming known in Argentina, and not many people were applying it as a tool to ease anxiety and stress.
At first, I applied the mindfulness workshops in an outpatient day center within a nursing home with the elderly, most of them suffered from a neurodegenerative disease such as Alzheimer’s or Parkinson’s. I applied mindfulness techniques after the cognitive rehabilitation workshops. I noticed the workshops helped reduce anxiety for the patients who were returning home.
A typical mindfulness session includes:
After attending a formal practical training in mindfulness, I was able to form my own personal path and experience with its practice. As I began practicing mindfulness in my day-to-day, I noticed an ease. I started to enjoy my bus commute, a good cup of tea in silence, listening to a song without doing anything else, and savoring a good meal. I became a tester of the little things in life—what in Japan they call Wabi-Sabi, the beauty of imperfection.
At the end of the virtual mindfulness session, I was left with several emotions that the patients manifested. Each person experienced something very different from the other, as each encounter is unique because the practices are 100% improvised.
I am moved by the dedication and effort that some people made to close their eyes; I can see what thoughts they struggled with that day. After a few minutes taking deep breaths, I observed how the energy transitions toward calm.
Despite us being miles away from one another, the act of taking time to sit, reflect, and listen to our bodies and minds helped reduce stress—we felt transformed.
Vicky started working at the Mat Foundation in 2012, and since then she has been in close contact with local associations, patients, and physicians. Currently, Vicky is working as Local Program Coordinator for Argentina, Peru, and Ecuador. She is based in Buenos Aires and has a psychology background. In her free time, Vicky likes to take photos and cook.
Tony Leo, musician and patient advocate shares his story of finding great passion and inspiration in the midst of facing his fears. “Passion is something that grips you, changes you and make you scale great heights where few will ever reach.”
Un Paso Max, meaning “Un Paso Mas” (One More Step) is a fitting name for a group led by cancer survivors who are willing to take an extra step to help others. Un Paso Max is the name of the CML and GIST patient association in the Dominican Republic. One can trace the origins of this group to a small meeting in 2008. It only took a bit of encouragement and support on the part of The Max Foundation to unlock the passion of a handful of courageous survivors in Santo Domingo, and the seed of a patient association was planted.
This year, like past years, 16 patient support groups in Africa and Middle East have joined the Maximize Life Campaign with enthusiasm and excitement. All the groups in Africa welcome back our friends from Sierra Leone who inspired us all with their resilience in the face of the Ebola epidemic that touched their country.
