Cancerworld recently published an article by Ann Wagstaff titled Begging for imatinib: why do so many patients still lack access to this lifesaver? It highlights the challenges people living with CML face in accessing imatinib, a life-extending medicine that has been generic for many years. Here is our perspective on the story.
We have known for some time that most innovative drugs are not available in low-middle income countries (LMICs) and that patients needlessly suffer without treatment. The Max Foundation bridges this gap by developing access models in LMICs in collaboration with it partners to help patients in urgent need.
This article is important because it dispels common myths about access to innovative medicines after patient expiry in LMICs and underscores that availability of treatments does not by itself create access for patients. These myths prevent progress. By telling the story of one of the first orphan drugs in cancer and what took place when the originator lost patent exclusivity, the article highlights three critical lessons that we must consider when developing solutions:
To achieve access for all, we must put the patient first and act as a global community instead of pushing responsibility on one another. As a first step, we must agree on a definition of access meaning that it only exists when all patients are able to receive the right treatment and the right dose at the right time.
Only by putting the needs of patients’ first and working together as a community can we drive lasting changes that will deliver real solutions for patients in need.
The Max Foundation is a leading global health nonprofit organization dedicated to accelerating health equity. For 28 years, Max has pioneered practical, scalable, high-quality solutions to bring life-extending treatments and patient-centered health care to more than 100,000 people living with cancer and critical illness in low- and middle-income countries. Max believes in a world where all people can access high-impact medicines, where geography is not destiny, and where everyone can strive for health with dignity and with hope.
For the 20th anniversary of World Cancer Day, we asked our global team members, physicians, patients, caregivers, and advocates to share what progress in cancer care means to them. Progress means all cancer patients get the treatment they deserve.[/e World Cancer Day, celebrated on February 4, is a global initiative that aims to raise awareness….
Each year, The Max Foundation chooses a colleague to receive our Excellence in Patient Advocacy Award, honoring a member of our global team who has done something especially remarkable that year. On December 17th, we were delighted to present this year’s Excellence in Patient Advocacy Award to Viji Venkatesh, Region Head for South Asia, for her tireless dedication to the patients she serves.
In Vietnam, due to the lack of specialist in rural areas, a significant number of chronic myeloid leukemia (CML) patients with minimal cash in hand must travel hundreds to thousands of kilometers to reach the hospitals in the city. The expenses for the trip itself is already a challenge for many patients let alone the cost of treatment. But today, there are numerous CML survivors who directly benefit from The Max Foundation’s patient access program to receive their cancer treatment at no cost. A living testimony to the success of our program is Lan.
