For World Cancer Day, GlobalWA interviewed Max CEO Pat Garcia-Gonzalez to hear about the many lessons she has learned in this work, and how both cancer treatment and patients’ access to treatment globally has changed. You can also catch Pat talk on February 12, 2019, at The Pacific Science Center: “the Good, the Bad, and the Ugly.” Pat will discuss the state of global cancer treatment and The Max Foundation’s strategies for removing barriers to access. More information here.
What lessons have you learned in 15+ years working in treatment access?
The first lesson I have learned is that it is possible. It is actually possible to provide access to innovative cancer treatment for patients living in low- and middle-income countries, even when the treatment might be long-term, and in some cases, indefinite. I have also learned that for every patient we are able to rescue, we are not only saving the life of that particular individual, but we are also saving the lives of many others in their family and their communities. We even have a great impact on the availability of oncologists and hematologists by providing the means for them to successfully treat patients and inspiring medical students to want to become oncologists and hematologists.
I have also learned that nothing is simple; these problems are often complex and require great commitment from multiple partners and a great deal of patience, hand-in-hand with a “never give up” attitude.
Finally, I have learned that no matter how hard it is, it is worth it.
What is different from when you started?
So much has changed since we started The Max Foundation. When we first began, targeted cancer therapies didn’t even exist! Then, of course, a miracle happened: Novartis developed imatinib (Glivec®) – this incredible drug that basically changed the nature of chronic myeloid leukemia (CML) turning the diagnosis from a death sentence into a disease that people could live with. Then, just as remarkable, a second miracle – the company decided they would provide access to those in need in low- and middle-income countries. They partnered with us to co-develop what went on to be known as the Glivec® International Patient Assistance Program (GIPAP). In the years that followed, more than 80,000 patients in low- and middle-income countries gained access to treatment through the program.
The Max Foundation is a leading global health nonprofit organization dedicated to accelerating health equity. For 27 years, Max has pioneered practical, scalable, high-quality solutions to bring life-extending treatments and patient-centered health care to more than 100,000 people living with cancer and critical illness in low- and middle-income countries. Max believes in a world where all people can access high-impact medicines, where geography is not destiny, and where everyone can strive for health with dignity and with hope.
Bunthan Kahn was diagnosed with chronic myeloid leukemia (CML) in 2017. He’s a tour guide, a husband, a young father, and an avid learner. From traveling far to meet with specialized physicians, to seeking treatment in his country, his journey toward finding hope took perseverance.
Radha Bai Chandra is a 62-year-old widow, a mother, and the longest-surviving beneficiary of Max’s programs in Fiji. Although her search for treatment was long and challenging, the second life she now has from that search is worth it. In 2005, Radha Bai noted a change in her energy levels. She was usually an active….
Thousands of patients are diagnosed with chronic myeloid leukaemia (CML) annually around the world. CML, like any other cancer, does not discriminate. It affects people from all regions and walks of life. However, unlike many other cancers, CML has an amazing story due to advancements made in its treatment in the last decade. It was only 15 years ago that a patient newly diagnosed with CML would have a prognosis of survival of less than 5 years with the treatments available at the time.
