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In Vietnam, due to the lack of specialist in rural areas, a significant number of chronic myeloid leukemia (CML) patients with minimal cash in hand must travel hundreds to thousands of kilometers to reach the hospitals in the city. The expenses for the trip itself is already a challenge for many patients let alone the cost of treatment. But today, there are numerous CML survivors who directly benefit from The Max Foundation’s patient access program to receive their cancer treatment at no cost. A living testimony to the success of our program is Lan.
Lan is a young, enthusiastic, Vietnamese woman living in Ha Noi, who refuses to be ordinary. On World CML Day 2017, Lan decided to let her treatment journey story to be heard. Lan was diagnosed chronic myeloid leukemia when she was 23 years old. Initially, she was hesitant to share her story with anyone. It was kept within the family, as she was scared, weak and lost. With an attitude “Never give up nor abandon hope” she kept searching and successfully found what she looked for – The Max Foundation’s “magical” patient assistance program that would bring her the necessary CML treatment. 11 years later and the innovative program still supports Lan and many other CML patients in Vietnam.
Today Lan is living a happy normal life. Like other people in Vietnam, she goes to work and contributes to society. Because of the benefits of the patient assistance program, and continued stigma against cancer patients, Lan has started sharing her story – starting with this video.
Lan is forever grateful for the government that acknowledges the importance of patient assistance program. With Lan’s advocacy and our ongoing work, we hope to see other sustainable treatment access programs extended to many other patients in need.
Thao Tang is a MaxStation based in Ho Chi Minh City, who is managing Patient Assistant Program and passionate about supporting cancer patients of Vietnam.
Tony Leo, musician and patient advocate shares his story of finding great passion and inspiration in the midst of facing his fears. “Passion is something that grips you, changes you and make you scale great heights where few will ever reach.”
The passing of our dear friend, advocate and colleague Ferdinand, has shaken the close-knit global chronic myeloid leukemia (CML) community. CML, a rare form of leukemia that used to be fatal, now is treated with innovative targeted therapies commonly referred to as TKIs. There has been unprecedented global access to these TKIs and this has fostered the development of one of the strongest global patient communities for a rare cancer. Ferdinand, from Nairobi, Kenya, was a loved member of this community.
Thousands of patients are diagnosed with chronic myeloid leukaemia (CML) annually around the world. CML, like any other cancer, does not discriminate. It affects people from all regions and walks of life. However, unlike many other cancers, CML has an amazing story due to advancements made in its treatment in the last decade. It was only 15 years ago that a patient newly diagnosed with CML would have a prognosis of survival of less than 5 years with the treatments available at the time.
