[vc_video link=’https://www.youtube.com/watch?v=ckmQNcicoZ0′]
In Vietnam, due to the lack of specialist in rural areas, a significant number of chronic myeloid leukemia (CML) patients with minimal cash in hand must travel hundreds to thousands of kilometers to reach the hospitals in the city. The expenses for the trip itself is already a challenge for many patients let alone the cost of treatment. But today, there are numerous CML survivors who directly benefit from The Max Foundation’s patient access program to receive their cancer treatment at no cost. A living testimony to the success of our program is Lan.
Lan is a young, enthusiastic, Vietnamese woman living in Ha Noi, who refuses to be ordinary. On World CML Day 2017, Lan decided to let her treatment journey story to be heard. Lan was diagnosed chronic myeloid leukemia when she was 23 years old. Initially, she was hesitant to share her story with anyone. It was kept within the family, as she was scared, weak and lost. With an attitude “Never give up nor abandon hope” she kept searching and successfully found what she looked for – The Max Foundation’s “magical” patient assistance program that would bring her the necessary CML treatment. 11 years later and the innovative program still supports Lan and many other CML patients in Vietnam.
Today Lan is living a happy normal life. Like other people in Vietnam, she goes to work and contributes to society. Because of the benefits of the patient assistance program, and continued stigma against cancer patients, Lan has started sharing her story – starting with this video.
Lan is forever grateful for the government that acknowledges the importance of patient assistance program. With Lan’s advocacy and our ongoing work, we hope to see other sustainable treatment access programs extended to many other patients in need.
Thao Tang is a MaxStation based in Ho Chi Minh City, who is managing Patient Assistant Program and passionate about supporting cancer patients of Vietnam.
When Ka came to Thailand for access to treatment, she had the chance to join the MaxSmiles patient group meetings. Ka started to dream about having her own meetings and soon found support from Dr. Mary Cluck, an Australian volunteer working with Cambodian CML patients. Ka stepped up and called the patients one-by-one to invite them to their first patient meeting.
Janaki is a happy 22-year-old woman living in Nepal and working at Century Bank. But this has not always been the case for her. At the ripe age of ten years old, Janaki’s physical health began to deteriorate, and her family was left searching for answers. With the financial burden being too much for her….
Each year on October 19th, Max’s Day, we honor Maximiliano “Max” Rivarola and his legacy of lifesaving support for cancer survivors through the work of The Max Foundation. This year, on Max’s Day at The Max Foundation’s 20th Anniversary Celebration, I wrote a letter to Max, reflecting on what his legacy has meant for patients,….
