[vc_video link=’https://www.youtube.com/watch?v=ckmQNcicoZ0′]
In Vietnam, due to the lack of specialist in rural areas, a significant number of chronic myeloid leukemia (CML) patients with minimal cash in hand must travel hundreds to thousands of kilometers to reach the hospitals in the city. The expenses for the trip itself is already a challenge for many patients let alone the cost of treatment. But today, there are numerous CML survivors who directly benefit from The Max Foundation’s patient access program to receive their cancer treatment at no cost. A living testimony to the success of our program is Lan.
Lan is a young, enthusiastic, Vietnamese woman living in Ha Noi, who refuses to be ordinary. On World CML Day 2017, Lan decided to let her treatment journey story to be heard. Lan was diagnosed chronic myeloid leukemia when she was 23 years old. Initially, she was hesitant to share her story with anyone. It was kept within the family, as she was scared, weak and lost. With an attitude “Never give up nor abandon hope” she kept searching and successfully found what she looked for – The Max Foundation’s “magical” patient assistance program that would bring her the necessary CML treatment. 11 years later and the innovative program still supports Lan and many other CML patients in Vietnam.
Today Lan is living a happy normal life. Like other people in Vietnam, she goes to work and contributes to society. Because of the benefits of the patient assistance program, and continued stigma against cancer patients, Lan has started sharing her story – starting with this video.
Lan is forever grateful for the government that acknowledges the importance of patient assistance program. With Lan’s advocacy and our ongoing work, we hope to see other sustainable treatment access programs extended to many other patients in need.
Thao Tang is a MaxStation based in Ho Chi Minh City, who is managing Patient Assistant Program and passionate about supporting cancer patients of Vietnam.
Suddenly, I noticed a man sitting just opposite to me staring at me. I thought he was annoyed at my loud voice. so I reduced my volume and kept on talking with my friend. While explaining, my eyes went towards the man. Again I noticed he was keenly listening to our conversation.
Finally the stop came! I got down with my friend and took 10 steps. I heard a voice behind me calling “Madam, madam!”
“CANCER” what comes to your mind as you read this six letter word? The five W’s, who, what, when, where and why comes to our head. In my life, who? Was my father, when? 2004, where? In his blood and why? The million dollar question whose answer we are still searching for.
For many patients, there aren’t many opportunities for them to learn about their disease directly from experts. So when the opportunity to hear from a hematologist at Naresuan University Hospital in Thailand, we were excited to maximize the event.
