Year after year I dread this day, March 9th, the day cancer took Max from us. No matter how many years pass, how excited I might be about our progress, our goals and vision for the future, as the day approaches, I feel a dark cloud settling in. Suddenly I am back to 1991 and the words of the doctor resonate loud, “I have nothing more”.
One doesn’t get over losing a child to cancer, nor does one get over a young mother losing their life, a sibling, a friend. There is no closure, there is no moving on; one just adjusts to live with that, not by choice but because there is no other option. However, if there is something I am grateful for, it is for the opportunity to turn the rage and frustration of not being able to save him into fuel that stops other families from going through this tremendous pain. And since these feelings never go away, every day is a new day with new opportunities to help more families.
I didn’t know then what I know now, that most, if not all, innovative life-saving medicines for cancer and other critical illnesses will never reach most people in the world who need them due to underlying structural global disparities. In other words, people cant access treatment simply because of where they were they live, that is the way it is and the world accepts it. Today I say no more and I ask you to join me in no longer accepting the status quo. It is not true that we can’t bring equitable access to treatment; it is not true that it is not possible to save these precious lives. Every reason we give to each other of why it is not possible is just an excuse. Together with our partners we have, in fact, shown it is possible and we have obliterated disparities in survival for the type of cancer Max had and more. We can do it for other illnesses as well and because we can, we must.
Today I pause and invite you to take a moment to remember our loved ones who have gone too soon, to say a prayer and light a candle, and to re-commit to continue to work as hard as we can to prevent unnecessary suffering and premature deaths.
Max Rivarola, October 19, 1973 – March 9, 1991
May his soul rest in peace and may our memories never fade.
Pat Garcia-Gonzalez is the CEO of The Max Foundation. Under Pat’s direction The Max Foundation is dedicated to accelerating health equity by delivering medication, technology, and services to patients facing cancer and other critical illnesses, focusing our energy on those who no one else is helping. Pat lives in Edmonds, Washington, where she raised her four sons.
Shalet Souza is a 42-year-old nun at the Institute of Sisters of the Little Flower of Bethany, in Mangalore, India. She currently takes care of aspiring nuns and lives a life devoted to learning and supporting others, including the poor and needy in her region. At 29, Shalet sought treatment for frequent fevers, which would….
One of the things I observed at Maputo Central Hospital was the level of comfort and trust between the physician and the patient. It is remarkable because until today the doctors had no effective treatment to give. And yet the patients came back, time after time, for regular check-ups, never losing hope.
Dr. Ong Tee Chuan, Hematologist at Hospital Ampang, Malaysia, break down what access to treatment means for the patients he treats.
