Living with cancer can be overwhelming, to say the least. People with chronic myeloid leukemia (CML) have to take daily medication, travel to clinics, and carefully monitor their symptoms, on top of working and caring for their families.
This has been Kiran’s reality for around 15 years – he was diagnosed with CML when he was only 20 years old. But he never lost hope. Not only did he continue to pursue his education and career, now he’s also helping other patients in need.
Kiran lives in Hunsur, India with his wife, Hema, and their 5-year-old daughter. He first started experiencing symptoms when he was working as a carpenter. That included weakness, fever, and a loss of appetite. He was shocked to learn he had CML and worried about being able to afford treatment.
“I was unable to work as a carpenter and earn a little for my medication, as the doctor advised me to avoid dust,” he said. “These unexpected expenses became a burden all the more to my parents, which bothered me day and night.”
The hospital recommended The Max Foundation. Together with our partners, we provide Kiran access to medication at no cost. Today, he is doing well and works as an attender at a private school in Hunsur. They encouraged him to take his pre-university exams.
Through it all, Kiran had plenty of support from loved ones – his parents, especially his mother, stood by through all his pain and struggles, his sister and brother-in-law offered financial and moral support, and his wife and her family gave him a new life.
Because of his, Kiran wants to pay it forward. He is active in patient support groups, sharing his experience and offering encouragement to others with CML. One day, he would like to form a group to help people in need, regardless of the cost.
“A big thanks to The Max Foundation,” Kiran said. “They brightened my life, put a ray of hope, and encouraged me to be the same ray of hope to others in similar situation.”
The Max Foundation is a leading global health nonprofit organization dedicated to accelerating health equity. For 28 years, Max has pioneered practical, scalable, high-quality solutions to bring life-extending treatments and patient-centered health care to more than 100,000 people living with cancer and critical illness in low- and middle-income countries. Max believes in a world where all people can access high-impact medicines, where geography is not destiny, and where everyone can strive for health with dignity and with hope.
This year, each of us had to learn how to support one another amid a global pandemic. In these difficult times, our mental and physical health have been tested and finding daily comforts is critical to our health. As each of us has taken steps to avoid infecting ourselves and reducing the risk of infecting….
Each year, The Max Foundation chooses a colleague to receive our Excellence in Patient Advocacy Award, honoring a member of our global team who has done something especially remarkable that year. On December 17th, we were delighted to present this year’s Excellence in Patient Advocacy Award to Viji Venkatesh, Region Head for South Asia, for her tireless dedication to the patients she serves.
Health systems around the world are strained due to the high burden of costs. In an attempt to guide decision-makers in their choices on behalf of patients, the topic of value frameworks was born. These value frameworks evaluate all aspects of cancer treatment: clinical benefit, side effects, and improvement in patient symptoms or quality of life. But given the complexities of the multitude of health systems around the world, it is not a straightforward discussion. And right now, it’s a dialogue driven by thought leaders and health economists from the US and Europe. But there are critical voices is missing from this discussion: patients and patient advocates.
