It’s been a busy spring at The Max Foundation! Along with the major update to our new site, there are some great stories to share from our global network.
Over the past few years, the India team has been concentrating on having gastrointestinal stromal tumor (GIST)-focused meetings throughout the country. Quarterly meetings have been happening in Mumbai 
since 2013, but this year included the first GIST meeting in Hyderabad. GIST patient groups were started because the large number of CML patients overshadowed the specific needs of those facing GIST.
Along with presentations from medical professionals and Q&A sessions, people also participated in an art therapy workshop – some enthusiastically and some with a little coaxing – so patients and caregivers can open up and empathize with each other. As our team in South Asia can attest, these bonds create lasting friendships.
Max Family, a patient support group in Malaysia, decided to make the best of their nice weather and took their next patient meeting outdoors. Max team member, Waheeda, shares how the day unfolded:
“I could see almost everyone wore a bright smile, what a wonderful start to the Sunday morning! Not only that, everyone brought something with them, from the picnic mat to yummy Nasi Lemak. How lovely to see everyone is trying their best to make it the best day.”
The picnic was filled with good food and stories, as well as plans for raising cancer advocacy throughout Malaysia.
We saw the beginning of storytelling workshops where patients, caregivers, and advocates gathered to learn the art of telling their story. India Region Head, Viji, shares what happened:
“The intimate setting of the smaller groups helped to do away with any feelings of shyness or hesitation. Each speaker had been heard before and received feedback from familiar team mates. The group representatives spoke and shared from their hearts and what was said resonated in one way or the other with everyone in the audience.”
We are sharing our executive reports for our many projects and campaigns. These reports give the story behind our efforts to raise awareness, build community, and help people facing cancer around the world. Our latest reports feature the results of our My PCR and Maximize Life campaigns. Read these reports to learn why we believe in raising awareness and advocacy around the world for people facing cancer.
The Max Foundation is a leading global health nonprofit organization dedicated to accelerating health equity. For 28 years, Max has pioneered practical, scalable, high-quality solutions to bring life-extending treatments and patient-centered health care to more than 100,000 people living with cancer and critical illness in low- and middle-income countries. Max believes in a world where all people can access high-impact medicines, where geography is not destiny, and where everyone can strive for health with dignity and with hope.
At The Max Foundation, we’re also continuously growing our brand and messaging to reflect the growing needs of our global communities and the patients we support. Today, we’re announcing an update in how we communicate our model: our Wraparound Support pillar will now be called Patient Services!
Health systems around the world are strained due to the high burden of costs. In an attempt to guide decision-makers in their choices on behalf of patients, the topic of value frameworks was born. These value frameworks evaluate all aspects of cancer treatment: clinical benefit, side effects, and improvement in patient symptoms or quality of life. But given the complexities of the multitude of health systems around the world, it is not a straightforward discussion. And right now, it’s a dialogue driven by thought leaders and health economists from the US and Europe. But there are critical voices is missing from this discussion: patients and patient advocates.
Nothing is more powerful than storytelling, especially when it’s told from a person’s first-hand experience.
In the Asia Pacific region, we are often known as “shy” community. We do not often share our stories publicly, especially a story about cancer diagnosis. We often have no one to turn to because we do not want our parents to worry; we do not want our children to feel the burden; we do not want to tell our neighbors who might be starting to avoid us because we are diagnosed with cancer.
