Meet Fiorella from Chiclayo, Peru. With determination, a positive attitude, and support from her husband and parents, she’s been successfully managing her chronic myeloid leukemia for 20 years now. She’s also been able to start a family of her own.
Fiorella’s story shows the power of the human spirit and the importance of providing access to high-quality medication for those who need it most.
The Max Foundation is a leading global health nonprofit organization dedicated to accelerating health equity. For 28 years, Max has pioneered practical, scalable, high-quality solutions to bring life-extending treatments and patient-centered health care to more than 100,000 people living with cancer and critical illness in low- and middle-income countries. Max believes in a world where all people can access high-impact medicines, where geography is not destiny, and where everyone can strive for health with dignity and with hope.
Cancerworld recently published an article by Ann Wagstaff titled Begging for imatinib: why do so many patients still lack access to this lifesaver? It highlights the challenges people living with CML face in accessing imatinib, a life-extending medicine that has been generic for many years. Here is our perspective on the story. We have known….
The passing of our dear friend, advocate and colleague Ferdinand, has shaken the close-knit global chronic myeloid leukemia (CML) community. CML, a rare form of leukemia that used to be fatal, now is treated with innovative targeted therapies commonly referred to as TKIs. There has been unprecedented global access to these TKIs and this has fostered the development of one of the strongest global patient communities for a rare cancer. Ferdinand, from Nairobi, Kenya, was a loved member of this community.
Nothing is more powerful than storytelling, especially when it’s told from a person’s first-hand experience.
In the Asia Pacific region, we are often known as “shy” community. We do not often share our stories publicly, especially a story about cancer diagnosis. We often have no one to turn to because we do not want our parents to worry; we do not want our children to feel the burden; we do not want to tell our neighbors who might be starting to avoid us because we are diagnosed with cancer.
