This year, like past years, 16 patient support groups in Africa and Middle East have joined the Maximize Life Campaign with enthusiasm and excitement. All the groups in Africa welcome back our friends from Sierra Leone who inspired us all with their resilience in the face of the Ebola epidemic that touched their country.
The month of October has become synonymous with a month where advocacy, disease information, and the fight against the stigma of cancer is at the frontline in the region. Many of the campaign events have invited local medial to increase the reach and visibility of the local support groups. Members of the groups have used their social media platforms to let the world know they are alive and living well with CML because they have access to treatment.
Patient leaders from Africa are taking to the airways during Maximize life to call on their local governments to get involved and increase access to treatment and monitoring tests for all cancer patients. Support group members are openly sharing their stories. Members want to educate their community on the importance of early cancer detection and treatment. They especially want to show that it is possible to be a productive member of society when one has access to treatment.
The Max Foundation is a leading global health nonprofit organization dedicated to accelerating health equity. For 28 years, Max has pioneered practical, scalable, high-quality solutions to bring life-extending treatments and patient-centered health care to more than 100,000 people living with cancer and critical illness in low- and middle-income countries. Max believes in a world where all people can access high-impact medicines, where geography is not destiny, and where everyone can strive for health with dignity and with hope.
Suddenly, I noticed a man sitting just opposite to me staring at me. I thought he was annoyed at my loud voice. so I reduced my volume and kept on talking with my friend. While explaining, my eyes went towards the man. Again I noticed he was keenly listening to our conversation.
Finally the stop came! I got down with my friend and took 10 steps. I heard a voice behind me calling “Madam, madam!”
Antonia was three years old when she was diagnosed with Chronic Myeloid Leukemia, and 4 years old when she attended her first Maximize Life Campaign event in Nicaragua. Her mother’s testimony inspired everyone present, but what was most surprising was the testimony that followed – Antonia’s: “Hello, my name is Antonia, and I am happy to be here!” After getting to know her, every member of Alas de Vida adopted Antonia as their own example to follow. She became The Princess, the little warrior who spreads optimism in the group.
Health systems around the world are strained due to the high burden of costs. In an attempt to guide decision-makers in their choices on behalf of patients, the topic of value frameworks was born. These value frameworks evaluate all aspects of cancer treatment: clinical benefit, side effects, and improvement in patient symptoms or quality of life. But given the complexities of the multitude of health systems around the world, it is not a straightforward discussion. And right now, it’s a dialogue driven by thought leaders and health economists from the US and Europe. But there are critical voices is missing from this discussion: patients and patient advocates.
