It’s been a busy spring at The Max Foundation! Along with the major update to our new site, there are some great stories to share from our global network.
Over the past few years, the India team has been concentrating on having gastrointestinal stromal tumor (GIST)-focused meetings throughout the country. Quarterly meetings have been happening in Mumbai 
since 2013, but this year included the first GIST meeting in Hyderabad. GIST patient groups were started because the large number of CML patients overshadowed the specific needs of those facing GIST.
Along with presentations from medical professionals and Q&A sessions, people also participated in an art therapy workshop – some enthusiastically and some with a little coaxing – so patients and caregivers can open up and empathize with each other. As our team in South Asia can attest, these bonds create lasting friendships.
Max Family, a patient support group in Malaysia, decided to make the best of their nice weather and took their next patient meeting outdoors. Max team member, Waheeda, shares how the day unfolded:
“I could see almost everyone wore a bright smile, what a wonderful start to the Sunday morning! Not only that, everyone brought something with them, from the picnic mat to yummy Nasi Lemak. How lovely to see everyone is trying their best to make it the best day.”
The picnic was filled with good food and stories, as well as plans for raising cancer advocacy throughout Malaysia.
We saw the beginning of storytelling workshops where patients, caregivers, and advocates gathered to learn the art of telling their story. India Region Head, Viji, shares what happened:
“The intimate setting of the smaller groups helped to do away with any feelings of shyness or hesitation. Each speaker had been heard before and received feedback from familiar team mates. The group representatives spoke and shared from their hearts and what was said resonated in one way or the other with everyone in the audience.”
We are sharing our executive reports for our many projects and campaigns. These reports give the story behind our efforts to raise awareness, build community, and help people facing cancer around the world. Our latest reports feature the results of our My PCR and Maximize Life campaigns. Read these reports to learn why we believe in raising awareness and advocacy around the world for people facing cancer.
The Max Foundation is a leading global health nonprofit organization dedicated to accelerating health equity. For 27 years, Max has pioneered practical, scalable, high-quality solutions to bring life-extending treatments and patient-centered health care to more than 100,000 people living with cancer and critical illness in low- and middle-income countries. Max believes in a world where all people can access high-impact medicines, where geography is not destiny, and where everyone can strive for health with dignity and with hope.
Living with cancer can be overwhelming, to say the least. People with chronic myeloid leukemia (CML) have to take daily medication, travel to clinics, and carefully monitor their symptoms, on top of working and caring for their families. This has been Kiran’s reality for around 15 years – he was diagnosed with CML when….
Dr. Jayasree Iyer, Executive Director of the Access to Medicine Foundation (ATMF), sits down with The Max Foundation and answers seven questions about the Access to Medicine Index, emerging trends in treatment access, and the role of collaborative access initiatives in treating chronic diseases.
In Latin America, the Maximize Life Campaign has become something like a tradition – a time when each patient organization creates an event or activity of their choice and powers it up for a campaign that takes on a life of its own!
13 patient groups from 11 Latin American countries joined this year’s movement, bringing together patients and caregivers with the purpose of telling the community that cancer is an issue, that ignoring it is not going to make it go away, and that the best approach is to learn about it in order to know what to do about it. From governments to the general public, everybody can get involved in figuring out how to treat cancer patients as members of society and not as a burden.
