It’s been a busy spring at The Max Foundation! Along with the major update to our new site, there are some great stories to share from our global network.
India’s GIST Meetings
Over the past few years, the India team has been concentrating on having gastrointestinal stromal tumor (GIST)-focused meetings throughout the country. Quarterly meetings have been happening in Mumbai since 2013, but this year included the first GIST meeting in Hyderabad. GIST patient groups were started because the large number of CML patients overshadowed the specific needs of those facing GIST.
Along with presentations from medical professionals and Q&A sessions, people also participated in an art therapy workshop – some enthusiastically and some with a little coaxing – so patients and caregivers can open up and empathize with each other. As our team in South Asia can attest, these bonds create lasting friendships.
A Picnic with Malaysia’s Max Family
Max Family, a patient support group in Malaysia, decided to make the best of their nice weather and took their next patient meeting outdoors. Max team member, Waheeda, shares how the day unfolded:
“I could see almost everyone wore a bright smile, what a wonderful start to the Sunday morning! Not only that, everyone brought something with them, from the picnic mat to yummy Nasi Lemak. How lovely to see everyone is trying their best to make it the best day.”
The picnic was filled with good food and stories, as well as plans for raising cancer advocacy throughout Malaysia.
Storytelling Workshop in India
We saw the beginning of storytelling workshops where patients, caregivers, and advocates gathered to learn the art of telling their story. India Region Head, Viji, shares what happened:
“The intimate setting of the smaller groups helped to do away with any feelings of shyness or hesitation. Each speaker had been heard before and received feedback from familiar team mates. The group representatives spoke and shared from their hearts and what was said resonated in one way or the other with everyone in the audience.”
New Release: My PCR and Maximize Life Executive Reports
We are sharing our executive reports for our many projects and campaigns. These reports give the story behind our efforts to raise awareness, build community, and help people facing cancer around the world. Our latest reports feature the results of our My PCR and Maximize Life campaigns. Read these reports to learn why we believe in raising awareness and advocacy around the world for people facing cancer.
The Max Foundation is a leading global health nonprofit organization dedicated to accelerating health equity. For 28 years, Max has pioneered practical, scalable, high-quality solutions to bring life-extending treatments and patient-centered health care to more than 100,000 people living with cancer and critical illness in low- and middle-income countries. Max believes in a world where all people can access high-impact medicines, where geography is not destiny, and where everyone can strive for health with dignity and with hope.
Related Articles
Building a Cancer Coalition in Guatemala
In Guatemala, there are 14,200 new cases of cancer a year and from this amount 9,100 people die of cancer or 64.7%. Most of these diagnoses could have been prevented or better treated if diagnosed early. In Guatemala only the persons who have access to the national social security plan have free services and treatment, but poor quality and lack of medications or in most occasions. People who do not have social security have to pay for health services and for medications. As per statistics taken from Globocan 2008, the most common cancers in Guatemala are prostate, cervix, stomach, breast and lung cancers.
Light a Candle on March 9th to Honor Max
March 9th marks a somber anniversary; the day Max lost his 3 year battle with chronic myeloid leukemia (CML). For those of us who love Max, who either knew him then or who know and love him now, this will always be a day of sorrow. The words that come to mind are words such as ugly, unfair, impossible, and the feeling is one of emptiness; a whole in one’s heart. Max was a real person, a beautiful young child, whose encounter with cancer was nothing but a tragic episode.
Max Goes to the World Cancer Congress
The Union for International Cancer Control (UICC) has been hosting the World Cancer Congress each year since 1933. This year it was held in Malaysia – the first time in South East Asia.
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