The Indian subcontinent has always been characterized by the stoic inner strength of its population that has helped them overcome natural and man-made disasters that seem to always be lying in wait for them. Burdened by their large populations, poor economy and the inept administration of their largely unstable governments, it has fallen upon the people to come to their own rescue.
And it is not so different for their health either. Besides the share of debilitating infectious diseases, many are facing a rising incidence of non-communicable diseases, such as cancer. The challenges here go beyond funding. There is fear, denial, and the heavy burden of stigma.
And yet, we see an indomitable spirit within our community that helps them overcome the toughest situation in their lives, seize available opportunities, and make the best of it. Through the power of belief, faith, and the humbling sense of brotherhood that brings their greatest strength, people in the South Asia region do everything they can to support each other and maximize their lives.
This is what we celebrate through our Maximize Life Campaign: by sharing the burden of disease among each other, immense strength is gained. The ability to rise above our deprivation leads the way to a life of service to others.
Whether it is a student of rural agriculture in Bangladesh, a government servant in Nepal, a young physician working in the hinterlands of Sri Lanka, or a bus conductor in a district of Western India, these are the achievers in the true sense of the word. And not just achievers, but advocates and role models.
So this year we celebrate and honor these superhuman beings who have been extraordinary advocates and have found unique ways to give back to society. They have shown us how to cope with the diagnosis and live life as winners. Not only have they looked after themselves but spent the time post-diagnosis providing specialized services to others.
These are men, women, and young adults who have set up support groups, schools, non-profits, and community centers in different parts of the region to show the way forward to so many others.
In the very centers that they have created, they will stand up and speak out. Throughout the land, all through the month of October, they will speak out against stigma and other perceived diminishing aspects of cancer and share their inspiring stories with the public. Their reach will be further maximized by using the power of the Internet and they will, in specially made videos, share with the world their incredible journey into a future that has no place for fear or stigma. Only the power of Maximizing Life.
Viji is based in Mumbai, India and has provided support to people living with cancer for over 30 years.
As part of our 20th Anniversary Celebration on October 19th, The Max Foundation was honored to have Princess Dina, President-elect of the Union of International Cancer Control, reflect on our global efforts over the last two decades. We share her letter here with gratitude and humility. “Lack of access to treatment” is a five-word sentence that is….
At The Max Foundation, increasing global access to treatment for people around the world living with cancer is a core element of our mission. But access to treatment is only one piece in helping all people facing cancer live with dignity and hope. Fostering care and support for patients processing the hardships of cancer is essential.
Health systems around the world are strained due to the high burden of costs. In an attempt to guide decision-makers in their choices on behalf of patients, the topic of value frameworks was born. These value frameworks evaluate all aspects of cancer treatment: clinical benefit, side effects, and improvement in patient symptoms or quality of life. But given the complexities of the multitude of health systems around the world, it is not a straightforward discussion. And right now, it’s a dialogue driven by thought leaders and health economists from the US and Europe. But there are critical voices is missing from this discussion: patients and patient advocates.
